International Essential Tremor Foundation (IETF)
International Essential Tremor Foundation (IETF)
  • Видео 58
  • Просмотров 1 099 709
Move-D Stabilizes Tremors in Children and Adults
Inspired to improve the quality of life for children and adults with upper extremity tremors, Innovation Lab and Children’s Hospital of Orange County partnered with the University of California, Irvine to develop Move-D, a mechanical elbow brace. Dr. Sharief Taraman, CEO of Cognoa, shares the story of Move-D.
Просмотров: 259

Видео

Essential Tremor Medications
Просмотров 2,1 тыс.Месяц назад
Learn about common medications for essential tremor (ET) in this presentation by Dr. Pravin Khemani, medical director of the movement disorders program at the Swedish Neuroscience Institute in Seattle. He also discusses current research into new medications to treat ET.
ET vs Parkinsons
Просмотров 2,7 тыс.3 месяца назад
In this presentation, Dr. Arif Dalvi, with the Palm Beach Neuroscience Institute in Florida, shares how neurologists evaluate and diagnose essential tremor (ET) and Parkinson’s disease (PD). He said almost every ET patient he sees is concerned they may have PD. Alternatively, almost every patient with PD asks him, “Are you sure I have Parkinson’s disease? Why is it not just essential tremor?”
Advancing Ulixacaltamide for Essential Tremor: Essential3, an At-Home Research Study
Просмотров 1,1 тыс.4 месяца назад
Essential3 study is an at-home research study evaluating an investigational drug, to see if it may improve your ability to complete everyday tasks, such as eating, drinking and dressing. The Essential3 study has been designed so that you may participate from the comfort of your own home.
Electricity as Medicine
Просмотров 7408 месяцев назад
Kate Rosenbluth, founder and chief scientific officer at Cala Health, discusses TAPS Therapy and Cala Health’s new kIQ System for the treatment of essential tremor.
7 Estate Planning Mistakes Most Families Make
Просмотров 516Год назад
Estate planning is about leaving the legacy you want to whomever - or whatever - is important to you. It can help you minimize income, gift and estate taxes also. The IETF often receives questions about this topic so Executive Director Patrick McCartney asked estate planning attorney Chris Gaughan, with Gaughan & Connealy, to share some tips. Learn more in “7 Estate Planning Mistakes Most Famil...
Ulixacaltamide Study Findings
Просмотров 1,2 тыс.Год назад
In this presentation, Praxis Precision Medicines presents the results of their Phase 2 clinical trial for a potential essential tremor medication.
Jazz Pharmaceuticals and JZP385 for ET
Просмотров 916Год назад
Staff from Jazz Pharmaceuticals give an update on the development of an investigational medicine for essential tremor, JZP385 in this video. Presenters are: Michelle Baladi, PhD, global development lead for JZP385, and Margaret Lee, PhD, early development lead for JZP385.
Praxis Precision Medicines and PRAX 944
Просмотров 509Год назад
Learn about Praxis Precision Medicines and their investigational medication for essential tremor, PRAX-944, in this presentation by Rich Able, PhD, vice president of global affairs.
Sage Kinetic 2 Trial
Просмотров 391Год назад
Learn about the Kinetic 2 Trial for Essential Tremor in this presentation by TinaMarie Lieu, PhD, medical director, medical affairs with Sage Therapeutics, Inc.
2022 ET Virtual Education Conference Session, Diagnostic and Treatment Options for ET
Просмотров 897Год назад
This video is one of several sessions we recorded from our 2022 Essential Tremor Virtual Education Conference. The topic is “Diagnostic and Treatment Options for Essential Tremor." It is presented by Dr. Stuart Isaacson, director of the Parkinson’s Disease and Movement Disorders Center of Boca Raton, FL.
2022 ET Virtual Education Conference Session, Essential Tremor Research Update
Просмотров 1,5 тыс.Год назад
This video is one of several sessions the IETF recorded during its 2022 Essential Tremor Virtual Education Conference. The topic is “Essential Tremor Research update.” The presenter is Dr. Holly Shill, with the Lonnie and Muhammad Ali Movement Disorder Center at the Barrow Neurological Institute, Phoenix.
2022 ET Virtual Education Conference, Coping with the Physical and Emotional Effects of ET
Просмотров 335Год назад
This video is one of several sessions the IETF recorded during its 2022 Essential Tremor Virtual Education Conference. The topic is “Coping with the Physical and Emotional Effects of Essential Tremor” presented by Kelli Reiling Ott, OTD, OTR/L, program manager of evidence-based practice at Children’s Mercy Hospital, Kansas City, MO.
Therapy Without Compromise with Boston Scientific
Просмотров 788Год назад
Learn about treatment options for essential tremor (ET) and get an in-depth look at deep brain stimulation (DBS) therapy, from start to finish. This presentation is given by Dr. Britt Stone, assistant clinical professor of neurology in the division of movement disorders at Vanderbilt University Medical Center. Dr. Stone also discusses image guided programming options for DBS offered by Boston S...
Essential Tremor: 10 Facts
Просмотров 31 тыс.2 года назад
Though essential tremor is one of the most common causes of tremor, it is not well known and often misunderstood. This video outlines the basic facts about ET and its impact. Special thanks to the Jerry Taylor and Nancy Bryant Foundation for their generous gift that helped make this video possible.
Essential Tremor and Young People: Gracie's Story
Просмотров 29 тыс.2 года назад
Essential Tremor and Young People: Gracie's Story
Research in Essential Tremor
Просмотров 14 тыс.2 года назад
Research in Essential Tremor
Differentiating Between Essential Tremor and Parkinson's Disease
Просмотров 11 тыс.2 года назад
Differentiating Between Essential Tremor and Parkinson's Disease
This is Essential Tremor
Просмотров 24 тыс.2 года назад
This is Essential Tremor
Essential Tremor Can Affect Anyone at Any Age
Просмотров 1,8 тыс.2 года назад
Essential Tremor Can Affect Anyone at Any Age
What is Essential Tremor?
Просмотров 95 тыс.2 года назад
What is Essential Tremor?
Exploring New Therapies for Essential Tremor
Просмотров 4,1 тыс.2 года назад
Exploring New Therapies for Essential Tremor
2021 Year-End Message from Dr. Kelly Lyons
Просмотров 4852 года назад
2021 Year-End Message from Dr. Kelly Lyons
Year-End Message from IETF Board Vice-President Shari Finsilver
Просмотров 1782 года назад
Year-End Message from IETF Board Vice-President Shari Finsilver
Tremors, Quakes and Shakes of the Voice
Просмотров 8 тыс.2 года назад
Tremors, Quakes and Shakes of the Voice
ET Awareness Water Bottles and Totes
Просмотров 4112 года назад
ET Awareness Water Bottles and Totes
Essential Tremor: Pediatric Onset
Просмотров 4,8 тыс.3 года назад
Essential Tremor: Pediatric Onset
The Impact of Essential Tremor (ET)
Просмотров 1,5 тыс.3 года назад
The Impact of Essential Tremor (ET)
She Calls Herself Shakey Nan
Просмотров 4,2 тыс.3 года назад
She Calls Herself Shakey Nan
National Essential Tremor Awareness Month 2021 Kick Off Video
Просмотров 4413 года назад
National Essential Tremor Awareness Month 2021 Kick Off Video

Комментарии

  • @dakirk1000
    @dakirk1000 4 дня назад

    ❤️❤️❤️🇨🇦

  • @insanitytruth
    @insanitytruth 10 дней назад

    I have essential tremor just like my father and grandfather. I can't remember exactly when it started but i couldn't have been older than 13 or so. I don't have it as bad as the people in this video and it only affects my hands, but it's still been frustrating having to give up on certain hobbies that require steady hands to do.

  • @Scott_Silver
    @Scott_Silver 11 дней назад

    You do lose your dignity and your livelihood, at least in my case

  • @jianding26
    @jianding26 11 дней назад

    I am 23 yrs old. I'm from Philippines. I have aware that about essential tremors. Because my hands were shaking, due to my anxiety, frustration, and depression. That's why I can't studying at college anymore due to my lacking experience in communicate with others and also my shyness. Also that scolded and verbal abused by my father when I'm not follow what he said before. But maybe I could control myself so that my tremors are not severed by relaxations.

  • @karenwisusa6258
    @karenwisusa6258 11 дней назад

    My tremors affect my head at rest. They move my upper body. No tremors in arms, hands, legs, or feet. I move and the head tremor seems to disappear. I have been diagnosed with Essential Tremor by two neurologists. Still questioning the diagnosis… The heavier vibration tool the dentist used today made them worse for a few minutes.

  • @NelichXCandii
    @NelichXCandii 13 дней назад

    Bless this lady. I have it in my hands and at times it comes to my head.

  • @jimowens381
    @jimowens381 25 дней назад

    This video was made before focused ultrasound for essential tremor was developed. This treatment is non invasive and very effective. If youve been diagnosed with essential tremor you owe to yourself to check it out

  • @letsseeif
    @letsseeif 26 дней назад

    I'm Australian and I am turning 85. My essential tremor began when I went through puberty.

  • @karenperry8976
    @karenperry8976 Месяц назад

    I knew that I had ET long before I was diagnosed. There's a lot of people in my family who have it. I had to quit teaching because I was losing the use of my hands. When we go out to eat, I always ask for a to-go cup with a lid or a child's cup with a straw. I get some funny looks, but it's better than dropping it or spilling it. My husband and I try to laugh at it because crying doesn't help. I have asked for adaptive flatware, but no one knows what that is. I guess I will have to buy my own.

  • @kellylequesne701
    @kellylequesne701 Месяц назад

    I have ET is this why when I do public speaking it look like I am wanting to cry( I don’t I feel ok)

  • @syntax4568
    @syntax4568 Месяц назад

    Love these eight exercises! 😅

  • @dawnhardy8438
    @dawnhardy8438 Месяц назад

    My husband (67) started his hand tremors two years ago after his first heart attack, as noticed by an acquaintance who is a retired doctor, his own GP did send his for Parkinson’s tests but the consultant said it wasn’t Parkinson’s. We’ve also told his GP about hub’s declining memory and increasing anxiety, but because he ‘passed’ the ‘remember this address’ test (though not all of it) no further investigations are being pursued. We really don’t know what else to do/which way to turn, he/we don’t want him to be ill, but we are worried he may be missing out on help to stop him getting worse

  • @mikomiko762
    @mikomiko762 Месяц назад

    I am watching this and 😢😢. I have this from 30 y old and i am 43 now. I have experienced so many mean comments about my shaking had😢😢. And even know still getting those comments. Sometimes.

  • @anahita.duh.
    @anahita.duh. Месяц назад

    Hy my right hand is haking a lil bit idk what to do it started 2 days ago is it normal or something severe plz reply🤧😭

  • @christineconley7903
    @christineconley7903 Месяц назад

    My 28 year old son has tremors. When he was a cashier at Walmart I made him a button to wear on his vest that said "I'm OK, my brain makes me shake"

  • @glennso47
    @glennso47 Месяц назад

    I have essential tremors and I feel so useless. I’m 77.

  • @marsharodgers3654
    @marsharodgers3654 Месяц назад

    Thank you so much for your videos. They have really helped me. I have ET and you have taught me so much.

  • @marksmadhousemetaphysicalm2938
    @marksmadhousemetaphysicalm2938 Месяц назад

    You’re not useless…I’m a neurological nurse and brain injury specialist and I have essential tremor from a TBI…long story…but it doesn’t make you useless…it does take patience and determination…but it doesn’t make you useless…I’m an old guy of fifty one…trust me on this…I’ve practiced nursing a long time…with essential tremor…and it’s fairly significant since my TBI…you can do things…😊😊😊😊

  • @larryboysen5911
    @larryboysen5911 Месяц назад

    Thankfully my Essential Tremor showed itself about two years ago...the individuals I feel for are those very young...at age 81...I feel fortunate that so fewer years are left for it to progress to worsening condition! I too, had moist eyes, upon viewing the poor woman with the advanced head tremor. Being a senior, I have friends who suffer, as well as a number of others in church and senior groups.

  • @karatyson8234
    @karatyson8234 Месяц назад

    My mother's family has passed this condition on for generations. Some of my mom's cousins had brain surgery...with lasting side effects. At least one ended up in a wheelchair--and still had a tremor. My mom started legal amounts of THC last week. Her tremors stopped within 10 minutes of her first dose. She can now write her name and eat in public without embarrassment.

  • @janetrjones7815
    @janetrjones7815 Месяц назад

    Mine started in my mid 30's with head shaking. Then in my 60's it went down to my hands. I so understand that poor lady who said she feel useless. You end up stopping anything that you need your hands for. I loved to paint, knit any craft was my pleasure and now I have had to stop all of it. I still cook for my husband and I, but it is a challenge. Everything from using a knife, fork etc, and cooking its self, trying to flip pancakes, what fun that is. Even typing this message or using my phone, it really is life altering.

  • @prunelle19
    @prunelle19 Месяц назад

    I'm wondering if anyone commenting here has tried a strict ketogenic diet to help with tremors. I know some people who tried it experienced reduction of tremors and overall improvement in quality of life

  • @peppermintmoon7354
    @peppermintmoon7354 Месяц назад

    I have anxiety, and I always thought that was the cause of my shaky hands. It wasn't until my late twenties that my great aunt on my dad's side off-handedly mentioned what it was, and it was probably genetic. I just figured her and my grandmother's shaky hands were a sign of age. We need more awareness of this condition.

  • @bennyg2526
    @bennyg2526 Месяц назад

    I am 28 and have had essential tremor since I was a kid. It is really rough for self-esteem since you get easily bullied because of that.

  • @Keira-qc5ps
    @Keira-qc5ps Месяц назад

    i just stood up and started uncontrollably shaking while stood up and i couldn’t think of anything during it what is it

  • @lynnschaeferle-zh4go
    @lynnschaeferle-zh4go Месяц назад

    I’m not as young as some, and my shaking started with a difficult divorce. But I’m sunk, because I’m an artist

  • @lindafouriehoniball3150
    @lindafouriehoniball3150 Месяц назад

    I went for a brain scan. The brain was Okay. But I still have tremorss in my hands.

  • @carznart
    @carznart Месяц назад

    I have this in just my left hand. Try to use my right to compensate.

  • @lauriepowell3959
    @lauriepowell3959 2 месяца назад

    I am 71 with Hashimoto’s and have had hand tremors for about 2 years now. What is also troubling is that when I get up in morning or get out of car, etc, my teeth chatter uncontrollably. I am thinking that might have something to do with changes of position from sitting to standing and vice versa.

  • @ashliestevenson6823
    @ashliestevenson6823 2 месяца назад

    I have actually stabbed myself in the face with a fork while eating

  • @ZeranZeran
    @ZeranZeran 2 месяца назад

    Ohhh.. shit. I'm 31, and I think this is coming soon.

  • @eddieblair9751
    @eddieblair9751 2 месяца назад

    I was born with it.. it wasn’t until 2022 that I was diagnosed with myoclonic and give seizure meds that it went away. I lived with it for 56 embarrassing years

    • @idek8718
      @idek8718 Месяц назад

      Nothing embarrassing about it! Hope you are doing better now!

  • @jnanashakti6036
    @jnanashakti6036 2 месяца назад

    Okay but who thought Mike was gonna say chicken shi(p) and not chicken scratching 😂 sorry just need some levity dealing with this in my 40s.

  • @labmaier3426
    @labmaier3426 2 месяца назад

    Thank you for doing such a great work!

  • @INANYMIN
    @INANYMIN 2 месяца назад

    I have it in my head ,hands , and voice .I have a consultation April 30th 2024.This appt is gor focused ultrasound to kill brain cells that cause tremors ,ill let u know in 3months if this works.

  • @richardschaffling9882
    @richardschaffling9882 2 месяца назад

    I have them and the neurologist just keeps prescribing different medicines and it don’t work. I don’t think the doctors know what they’re doing.

  • @combatepistemologist8382
    @combatepistemologist8382 2 месяца назад

    Beta Blockers (propranolol, metoprolol, etc.) have helped me a lot. These meds are normally used to treat high blood pressure and are generally safe for the gen. pop.

  • @margaretmcdonough7073
    @margaretmcdonough7073 2 месяца назад

    I want to say to the woman who said that she is useless that she is not. Her story can, will, and does help so many people. Keep up the fight and remember that Jesus will carry you when it gets tough (which is , I imagine , most of the time).

  • @ruthmarymccarterbogue1925
    @ruthmarymccarterbogue1925 2 месяца назад

    So far I have had no help. I've been DX'd with Neural Myoclonus. He sed "incurable" but he hasn't even approached the tremor. I may have to approach it with more "push" it is really bad at times..hold that coffee with 2 hands,etc. writing is a joke. My hubby has taken over the writing aspect.

  • @user-oy6cu7gx9b
    @user-oy6cu7gx9b 2 месяца назад

    I've had essential tremor since elementary school. It wasn't diagnosed until I was in my 50s; I am now 75. I have tremors in both hands, head shakes, and a deepened and shaky voice. I used to try to hide it, which made it worse. Now when I first meet someone I tell them right away about my tremors, head shaking, and why my voice sounds like I'm nervous. I took Primidone, and it worked, but after I had a pulmonary embolism, I started taking Eliquis, and had to switch to Propranolol. I am considering having MRgFUS, but I haven't talked with my doctor about it. Has anyone here had the treatment? Did it work for you?

  • @SupportAZ
    @SupportAZ 2 месяца назад

    I've read that ET usually affects the whole hand in general -- not one or two fingers. So, what about the quivering of a finger when held up against gravity (postural tremor)? Would that tend to indicate task-specific tremor, which is a different condition? My index finger has developed a quiver when held up while playing piano, or when holding it up from the computer mouse. My finger also quivers if I slowly curl it up (action tremor). Stress can also exacerbate tremor conditions. Fortunately, it doesn't quiver in the resting state, such as while resting on the mouse or while hanging my hand down by my side. That would suggest Parkinson's.

  • @sherigibbs2733
    @sherigibbs2733 2 месяца назад

    Does anyone have tremors in hands at rest? or just when doing something?

  • @sherigibbs2733
    @sherigibbs2733 2 месяца назад

    So glad to see others have this, I have been feeling very alone and worried. Just started testing at doctors and hoping I do not have parkinsons.

  • @Ggfromca
    @Ggfromca 2 месяца назад

    Does anybody have tremors at night while in bed. I get them in bed and there not gentle rolling tremors.

  • @priscillatehmeh7195
    @priscillatehmeh7195 3 месяца назад

    My hands have been shaking since I was 14, and now I am 30, it has worsened. I had to quit medical school because of my shaking hands. I sometimes feel embarrassed because everyone noticed my handshake and pointed it out. My granddad had it, my dad had it, and my little sister had it.

  • @marides1479
    @marides1479 3 месяца назад

    Thank you for the info. I understood from info on ET that calcium leaks out of the brain cells. I have ET and also CPVT a heart failure also leaking calcium out of the heart cells is their any connection between these two conditions?

    • @EssentialTremorIETF
      @EssentialTremorIETF 3 месяца назад

      We are not familiar with this. Did you read it in a study or online somewhere?

    • @marides1479
      @marides1479 3 месяца назад

      There are several studies from Yale, Columbia University in investigating this on Alzheimer, cognitive decline, Huntington. The study on ET is out there somewhere I continue to find this for you

  • @gg22499
    @gg22499 3 месяца назад

    Thankyou very much ..this is very helpful to understand my father's condition. 😢

  • @780special
    @780special 3 месяца назад

    I have coped with ET since I was about 10 yo. I found it profoundly damaging ,as you are perceived as 'weak' or nervous ,when you aren't. I have even been accused of being an alcoholic for shaking . I didn't actually find the name of the condition until I was 24 , and was simply told there was nothing that could be done for it. Mine is familial as my late mother and maternal uncle both had/ have it. I have had a number of serious health conditions, including Lupus and Sjogrens syndrome and spondyloarthropathy; which between them make me regularly feel unwell. But it's (benign ) essential tremor that I hate the most for its social impact on me ,particularly as a young man. I too wanted to hug that lovely lady on the video who feels so useless, and assure her she is not. I am 64yo now and no longer get embarrassed by it, as it has got worse in the last few years. My heart goes out to young people first coping with it in school or socially. I grew up with people sometimes serving tea in a China cup and saucer; and came to hate the social stigma of my rattling cup and saucer .

  • @tonymurphy9112
    @tonymurphy9112 3 месяца назад

    My daughter and I both have ET. Cannabis definitely works and is very effective. My daughter studies in the Netherlands and has tried Cannabis on a regular basis and she swears it helps her shakes. As a young man I also tried Cannabis and I felt it improved my memory and I was able to study and pass my exams.